Monday, October 26, 2009

No Updates Today

We have no updates today. Instead, you'll find links to information on Marfan Syndrome

General Information;
From Wiki

Educational Materials;
Posters/Pamphlets They have one that is excellent for coaches, school nurses, and other fitness instructors.

For Emergency Medical Personnel;


EMS Providers Just a note; I was told when Michael was suffering a life threatening tear, the EMS workers, believing him to have indigestion, insisted he walk down 3 flights of stairs to the ER. When he arrived, doctors had 17 minutes to ice him and get him to surgery. I think a little education would help, so if you can, please educate your local EMT's and emergency room workers.

Hope everyone has a great day today. Many thanks for your continued prayers.


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